A diamond is the ultimate gemstone, having few weaknesses and many strengths. Formed under pressure, the diamond is the hardest substance found in nature. There is nothing on earth that is stronger, more durable and enduring than diamonds. An uncut diamond represents the untapped potential that lies in all of us.The theme for the 35th Disability Blog Carnival is "The Hardest Part" and was chosen by my readers. The posts get beneath the merely superficial and into the "real"...the core of what we experience as people with disabilities and people who parent children with special needs. Put on your hardhat and goggles and delve in...what you discover may be of great value.
The hardest part for some is the pain they experience or watch their child experience. Onegirlfriday writes in her post A Jewel "As a family, we grapple for balance. And the core gets stronger. All the resistance training produces strength." At Barbara's Tchatzkahs she writes about the crippling pain of fibromyalgia and how dealing with some in the medical community can be almost as painful.
Oftentimes the hardest part is not disability...but stereotyping, prejudice and discrimination that come as a result of ignorance and arrogance. It takes strength and courage to combat this. Lovely and Amazing posts about an arrogant university professor and Amy posts about discrimination at her school and how she stood up and made a difference.
An interesting and infuriating post at Big Noise is entitled: Acupuncture Board: Blind Need Not Apply a story about Juliana Cumbo and her fight to become a licensed acupuncturist in the state of Texas. Fight on Juliana! We're with you. Sweet Perdition writes about the prejudice that people with different types of disabilities inflict on someone with another type in her thought-provoking post Hard Parts.
Dave Hingsburger wrote about a man protective of his wife at Smitty's, "...when I glanced over I met his hard, hard eyes. He was a frail old guy and he looked like an old guard dog that was ready to do one more battle if he needed to. I just smiled at him, he didn't smile back. He just slid along the booth closer to her. A statement that she was his, he loved her, and I had better watch myself." If this guy is not a diamond in the rough I don't know who is. Dave also has some excellent advice for parents "having an intellectual disability means having difficulty with learning, it doesn't mean that they won't grow up, they won't get jobs, they won't get married. It means that they will find some things hard that others find easy." Can I just say, AMEN?
For parents one of the hardest parts is letting go which Rob writes about in his post Letting Go and Catching Up. There is also the irritation of dealing with flaky therapists of which Rebecca writes, "It's hard enough for a parent to acknowledge that his/her child needs professional assistance. Harder yet when professional assistance isn't at all professional."
As a parent myself, I can relate to feeling helpless at times when I don't know how to best support my son. I really liked the posts on the heartbreak we sometimes experience in parenting. Mir writes The sounds only he can hear and I feel I was there on the soccer field. At Friday Playdate, Susan writes what it's like "The hardest thing for me about parenting Henry has been the sense that every time I get my feet under me, the ground moves again and I am left struggling to get my balance. My only hope, honestly, is that Henry will look back one day and realize that even when I had no idea what the hell I was doing, I was still right there, trying to do something. Or just loving him for who he is."
Lack of privacy, social identity, honesty, trust and vulnerability can also be hard issues written about in these posts:
Terrible Palsy: The Hardest Part
The Hardest Part...of being who we are
Abnormaldiversity: Social Identity
The Hardest Part of Epilepsy
Women with Disabilities and Domestic Violence
Loneliness, depression and just plain feeling different can also be hard parts which can accompany the human experience. Emma shares her thoughts, "...right at this moment being stopped by my depression - that’s the hardest part." Myveryownkarma writes Differences... For Ekie, the hardest part is the lonliness she experiences, "It’s such a simple thing. I’m not asking for riches or world peace, or even a boyfriend...I just want somebody to be able to call up on a Saturday night to watch a movie with, go on a hike, go swimming with in summer, to tell about my cousin’s new baby or the book I’m reading."
I hope in your reading you have found some diamonds or nuggets of value. To finish this carnival I will leave you with the following quote from Sunny Dreamer in her post about being a strong woman, "...being strong means standing firm, being your own rock when it seems no one is there for you to lean on in the face of adversity."

15 comments:
That all sounds exciting....I'm off for a big read!
Thanks for that Jodi...
LinMac
What a fantastic post! I really enjoyed this disability blog Carnival, thank you for putting it all together. I hope you have a great day, thanks again.
Greg
WOW what a lot of great links - thanks Jodi.
Have a good day - nice to see you - Kellan
Great carnival.
Thank you for including me. Great theme, btw.
Hi Jodi. Ekie also did a post here - http://equalnotspecial.wordpress.com/2008/04/04/disability-blog-carnival-entry/ for the Carnival. Great theme and thank you for all your hard work.
Hi Jodi,
Thanks for including us. Very well put together; I look forwarding to reading all the posts you've collected together.
wrote a poem for your son, Jodi........
just felt inspired to do that reading your posts about him
Athena of athenivanidx
here it is
http://athenivanidx.wordpress.com/2008/04/12/for-kellen-budding-independent-spirit/
darn.......the link got cut off.....sorry about that. Just click on my name.......its the most recent post, "Budding Independent Spirit"
Thanks Jodi--I've been on spring break for a week, this is great to come back to. Sorry for the delay in getting this linked in the blogcarnival.com system and all that--it'll be taken care of today.
PS--the next carnival edition will be hosted by Ettina at Abnormaldiversity, with the theme "Abuse." Submissions due April 21, for the April 24 posting.
Oh rats, I didn't want to miss this carnival as I had a post in mind. Great reads, though!
Great carnival, Jodi, thanks!
Thanks for including me Jodi- it's been great finding you and your great links!
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