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Ever so slowly...things are getting better. Kellen is having better days. His mood is fairly stable and instead of the unpredictable pattern of good day/bad day/bad day...he is having mostly "good enough" days. Days where he can leave the house once or twice. He is far from the functional level that he used to be at...but we're learning to say, "It is...what it is." Kellen is doing the best he can and we are doing the best we can to support him.
Acceptance. It's a tricky thing. Dicey. Do we accept what is? Do we accept this new place? This place where our sixteen year old son does not go to school. Is not able to go to school?...or do we keep trying new things? Keep pushing for something better? Try to find the Kellen we used to live with or embrace our son as he presents himself? If we accept things the way they are...does that mean we are giving up? I don't know.
We take each day as it is. We encourage him to try a little more, but if there is too much resistance, we let him be. Always letting him know how much we love him and that our love is not dependent on what he can or cannot do. As his parents, we are accepting our own impatience, our frustration, our shortcomings, and our lack of control over the situation. As we move closer to accepting Kellen for who he is, we are also accepting ourselves for who we are.

6 comments:
As we move closer to accepting Kellen for who he is, we are also accepting ourselves for who we are.
So true.
It makes life so much easier for everyone.
Best wishes
This is my calling card or link"Whittereronautism"until blogger comments get themselves sorted out.
You are doing a great job, as always!
And that is why you are an awesome mom. X
You are a wonderful mama, you know?
As a parent who also lives with a young woman (21 years with Down syndrome) who also struggles with anxiety issues (diagnosed with Seasonal Affective Disorder and Social Anxiety Disorder for those who want labels), your words in this posting resonate with me on our journey with our daughter. It's an interesting, hopeful, frustrating, exhausting, joyful, embarrassing, loving journey.
Thanks for sharing,
Lorna
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