Showing posts with label Disability Blog Carnival. Show all posts
Showing posts with label Disability Blog Carnival. Show all posts

Saturday, June 21, 2008

Thoughts on Celebrations


Our family started a mini-tradition a few years ago. When we went out to eat, if one of our kids wanted to order something special in addition to dinner (like an Italian soda or dessert)I would say something such as, "I don't know...that sounds like something you could order if we were celebrating something...are we celebrating something?" Then they would have to think of something quickly that we could be celebrating.

The game got to be quite funny as the suggestions got more outlandish. The amazing thing was that we always found something to celebrate. Celebration can be found in every moment of every day.

When Kellen was a baby he went to an early intervention center for physical therapy in order to help him with his low-muscle tone. The therapist would work with him on exercises to help him learn to hold his head up, sit upright, or walk. The therapy was helpful for him and for us as his parents, as we watched in order to learn how to work with him at home. It seemed to take forever for Kellen to achieve these milestones and the the thing that used to get to me was when he finally did, the therapist would smile or briefly clap for him...and then move on to another exercise. There was always another milestone to focus on...it seemed there was no time given to celebration. We worked months on some of these tasks...where was the party?...the glimmering medal?...the circus parade? Life is hard, make sure to take the time to celebrate.

Lastly, "Celebrate love. It is the breath of your existence and the best of all reasons for living."

Tuesday, April 29, 2008

Blogging Against Disablism Day


I plan on joining in May 1st for Blogging Against Disablism Day. Here is the description from Diary of a Goldfish who will be organizing:

Blogging Against Disablism Day is an annual event in which disabled and non-disabled bloggers throughout the world unite in the cause of equality. On May 1st, bloggers shall write about their experiences, observations and thoughts about disability discrimination (disablism, sometimes ableism) and what we might do about it.

If you'd like to join in, go here and leave a comment.

Wednesday, April 9, 2008

Disability Blog Carnival: The Hardest Part

A diamond is the ultimate gemstone, having few weaknesses and many strengths. Formed under pressure, the diamond is the hardest substance found in nature. There is nothing on earth that is stronger, more durable and enduring than diamonds. An uncut diamond represents the untapped potential that lies in all of us.

The theme for the 35th Disability Blog Carnival is "The Hardest Part" and was chosen by my readers. The posts get beneath the merely superficial and into the "real"...the core of what we experience as people with disabilities and people who parent children with special needs. Put on your hardhat and goggles and delve in...what you discover may be of great value.

The hardest part for some is the pain they experience or watch their child experience. Onegirlfriday writes in her post A Jewel "As a family, we grapple for balance. And the core gets stronger. All the resistance training produces strength." At Barbara's Tchatzkahs she writes about the crippling pain of fibromyalgia and how dealing with some in the medical community can be almost as painful.

Oftentimes the hardest part is not disability...but stereotyping, prejudice and discrimination that come as a result of ignorance and arrogance. It takes strength and courage to combat this. Lovely and Amazing posts about an arrogant university professor and Amy posts about discrimination at her school and how she stood up and made a difference.

An interesting and infuriating post at Big Noise is entitled: Acupuncture Board: Blind Need Not Apply a story about Juliana Cumbo and her fight to become a licensed acupuncturist in the state of Texas. Fight on Juliana! We're with you. Sweet Perdition writes about the prejudice that people with different types of disabilities inflict on someone with another type in her thought-provoking post Hard Parts.

Dave Hingsburger wrote about a man protective of his wife at Smitty's, "...when I glanced over I met his hard, hard eyes. He was a frail old guy and he looked like an old guard dog that was ready to do one more battle if he needed to. I just smiled at him, he didn't smile back. He just slid along the booth closer to her. A statement that she was his, he loved her, and I had better watch myself." If this guy is not a diamond in the rough I don't know who is. Dave also has some excellent advice for parents "having an intellectual disability means having difficulty with learning, it doesn't mean that they won't grow up, they won't get jobs, they won't get married. It means that they will find some things hard that others find easy." Can I just say, AMEN?

For parents one of the hardest parts is letting go which Rob writes about in his post Letting Go and Catching Up. There is also the irritation of dealing with flaky therapists of which Rebecca writes, "It's hard enough for a parent to acknowledge that his/her child needs professional assistance. Harder yet when professional assistance isn't at all professional."

As a parent myself, I can relate to feeling helpless at times when I don't know how to best support my son. I really liked the posts on the heartbreak we sometimes experience in parenting. Mir writes The sounds only he can hear and I feel I was there on the soccer field. At Friday Playdate, Susan writes what it's like "The hardest thing for me about parenting Henry has been the sense that every time I get my feet under me, the ground moves again and I am left struggling to get my balance. My only hope, honestly, is that Henry will look back one day and realize that even when I had no idea what the hell I was doing, I was still right there, trying to do something. Or just loving him for who he is."

Lack of privacy, social identity, honesty, trust and vulnerability can also be hard issues written about in these posts:
Terrible Palsy: The Hardest Part
The Hardest Part...of being who we are
Abnormaldiversity: Social Identity
The Hardest Part of Epilepsy
Women with Disabilities and Domestic Violence

Loneliness, depression and just plain feeling different can also be hard parts which can accompany the human experience. Emma shares her thoughts, "...right at this moment being stopped by my depression - that’s the hardest part." Myveryownkarma writes Differences... For Ekie, the hardest part is the lonliness she experiences, "It’s such a simple thing. I’m not asking for riches or world peace, or even a boyfriend...I just want somebody to be able to call up on a Saturday night to watch a movie with, go on a hike, go swimming with in summer, to tell about my cousin’s new baby or the book I’m reading."

I hope in your reading you have found some diamonds or nuggets of value. To finish this carnival I will leave you with the following quote from Sunny Dreamer in her post about being a strong woman, "...being strong means standing firm, being your own rock when it seems no one is there for you to lean on in the face of adversity."

Thursday, March 27, 2008

The Hardest Part

A diamond is the ultimate gemstone, having few weaknesses and many strengths. Formed under pressure, the diamond is the hardest substance found in nature. There is nothing on earth that is stronger, more durable and enduring than diamonds. An uncut diamond represents the untapped potential that lies in all of us.

The theme of the next Disability Blog Carnival on April 10th is "The Hardest Part."

Feel free to let this theme take you where it will. Submissions are due by April 7th. You can use the Disability Blog Carnival form or email your submission to: reimerreasonblog@aol.com

I'm looking forward to seeing where your creativity takes you!

Saturday, March 22, 2008

The Hardest Part

And I tried to sing
But I couldn't think of anything
And that was the hardest part...

Coldplay

Break out your creativity..The Hardest Part is the winning theme for the Disability Blog Carnival I will be hosting here on April 10th.

If you want to watch the horrifyingly fascinating video that goes along with this Coldplay song, you can find it on YouTube here. You will not know whether to laugh or cry!

If you want to hear just the song without the amazingly funny, yet disturbing video...you can do that here.

Thursday, March 20, 2008

Tie-Breaker Needed

The vote for the theme of the April 10th Disability Blog Carnival was a tie between Fix You and Hardest Part. A tie-breaking vote is needed! (this sounds so important)
Please scroll down to the bottom of this page and vote for your one choice for a theme. Voting ends Saturday morning.

Wednesday, March 19, 2008

Disability Blog Carnival

It's down to the wire....
Please scroll down to the bottom of this page and place your vote for the theme of the Disability Blog Carnival which will be hosted here at Reimer Reason on April 10th. Tomorrow night the poll will close and I'll announce the winning theme.

Thursday, March 13, 2008

Help Me Pick a Theme

I'll be hosting the Disability Blog Carnival here on April 10th. Once again, it's time to help me pick a theme. The poll can be found at the bottom of this page. Vote for as many themes as you'd like. The theme with the most votes in one week will be the winner. If you know what all of the theme's listed have in common, leave me a comment. A prize for the first person who gives me the correct answer!

Thursday, September 13, 2007

Disability Blog Carnival #22: Resilience


Welcome to the 22nd edition of the Disability Blog Carnival! In honor of this being the 22nd edition, I have for you twenty-two posts on the subject of: Resilience. I have loved reading all of the posts submitted and in doing so I have learned quite a bit about the things that make people resilient. There are people who use humor or call on their faith in God. Their are those of us who adapt, persevere, adjust their perspective, come to accept, see beauty, find joy. Fasten your seat belts, because you are about to meet some incredible people.

My favorite method of coping is using humor, so let's start there. Stephen from Planet of the Blind writes Sauna Talk and Powerchair Diaries writes Conversation With A Crazy Kid. Both of these posts are about intrusive people asking intrusive questions...sigh. Dave Hingsburger is over at Chewing the Fat. I read his blog every day and many of his posts are about humor and resilience, but I especially like this one about the time he unexpectedly made a little money and then needed to quickly "restore balance to the universe."

Let's move on to those who wrote about using their faith to hold them up during times of adversity. Larissa is one of the writers at Pray For Ian. Her boyfriend Ian was seriously injured in a car accident nearly a year ago, and she writes about Dating Ian after the accident. Even though our life situations are very different, I could really relate to what it's like to watch someone you love lose skills and change into someone you hardly recognize. I was encouraged by reading this blog and reflecting on the faith it takes to continue to hope while you are supporting someone to recover after a significant illness or injury. Next is Spin Cycle Resilience from Lessons from the Laundry. “Ahh, but maybe there lies the secret of the resilience; I had to look in the face of adversity for a bit, check out the wrinkles, creases and zits, and say, “You may be ugly, but I’m not afraid,” and “I won’t let you consume me,” and “I’m turning you over to God.” Good stuff! Bonus: just by coincidence, she uses the example of a resilient spider (just like my Blog Carnival logo.)

The ability to adapt, adjust and change course a little bit are important aspects of resilience. I write This Thing Called: Resilience which is an introspective look on the question, "Am I resilient...or not?" Pitt Rehab writes: "Resilience also impacted my personality. I needed to become much more patient with myself and others. I needed to give myself permission to let others complete task for me. Learning that I could contribute in many ways not just physically." Wise words. Bipolar Works writes in Super Human Extra Special, "It seems to me that all this extra physical and mental exertion required to just get through the day as a disabled person means that some of us have developed super human extra special skills that could be used to our advantage in other areas of our lives e.g. work, study, friendships and relationships." Here! Here! Alice is a parent who writes on her blog Ups and Downs, Yuck! I've Had Enough of Learning Curves. I think they call these AFOG experiences: Another F'ing Opportunity for Growth.

Then, there are those of us with a fighting spirit who really know how to persevere and then write about it. Check out Ettina's blog Abnormaldiversity and her post: Resilience and also Wheelchair Dancer's post where I love this quote: "Now I think of resilience as being akin to the willow tree: bendy but not necessarily springy. Most importantly, however, the tree just settles where it is. It doesn't need to come back to the same position every time."

Resilience often involves a shift of perspective and even seeing the beauty. Read Emma's poem, It Doesn't Have Me and Connie's, Thank Poetry for His Resilience. Kevin is a proud dad at Left Brain/Right Brain who started something beautiful when he posted a video of his daughter with autism and received hundreds of responses. He writes, "The song ‘Beautiful’ was specifically chosen because I believe that my daughter is beautiful. I also believe that that fact that she is autistic helps contribute to that beauty."

Through my reading I discovered just how much an individual's resilience can go up and down. Depression can strike any of us. Check out Tokah's post: He's Depressed. I Married Him. Over at Breed 'Em and Weep, Jenn has written an excellent post called The More You Know! which could be the perfect public service announcement on what not to say to someone who is experiencing depression. That post is going to stick with me for a very long time.

Are you still with me? Great! How about some joy? You can go about Taking the Advanced Course from bouncy three-year-old Frances or from Wheelie Catholic Ruth in her post, Resilience is About the Joy of Living. See? I told you that you would meet some incredible people.

How about a little acceptance people? On Autism Vox you can read, What qualities does the parent of an autistic child need to have? Acceptance is right up there! Sunny Dreamer writes about her seizures, "They'll come when they come and be over when they're over. The best I can do is not fight them like I used to, and the aftermath won't be as bad."

I hope you've enjoyed this carnival as much as I have. To finish things up, here are some entries with examples of some very resilient folks. Let's start with Franklin Delano Roosevelt who Lorraine writes about in The FDR Principle. Danielle is a medical student at 6YearMed and she wrote, It Is Well (which made me cry). Last, but not least, is Dr. Rob from Musings of a Distractable Mind who gives several examples of resilient people he knows and then writes, "It seems to me that the pain we may fear the most may actually free us from the anxiety we are so trapped by. It seems to me that resilient people have discovered that secret. They understand that pain is simply a normal part of life and so it does not hold them captive in fear."

The next Disability Blog Carnival is on September 27th at Pedestrian Hostile.

Thursday, September 6, 2007

Disability Blog Carnival

Don't forget, next Thursday I will be hosting a Disability Blog Carnival here on my blog. The subject is: Resilience. I have been getting dozens of entries and it looks to be an exciting carnival. Please join us!

p.s. If you have a blog post on the subject of resilience, please go to the blog carnival website and enter it.

Saturday, August 18, 2007

Top Ten Ways to Support People with Intellectual Disabilitues

10. Give me time to process, especially information given verbally

9. Be flexible, not rigid. Does it really matter how I do it as long as it gets done?
8. Help me know what to expect

7. Tell me what "to do" not "what not to do"

6. Using humor goes a long way

5. If you want me to do something a certain way, show me right from the beginning how you want me to do it

4. Don't take away my independence

3. Always give me choices, but only as many as I can handle

2. Take time to build rapport with me. I will most likely cooperate because of our relationship, not because you are an authority figure

and the number one way to support me:

1. Treat me with dignity and respect...always

Wednesday, August 8, 2007

The People Have Spoken

The theme for the September 13th Blog Carnival will be "Resilience". A quality conveyed through feelings, thoughts, and behaviors that facilitates the ability to overcome adversity. Here is a little preview of some articles on the internet to whet your appetite:

Raising Resilient Children

What Makes Families Resilient?

Becoming a Resilient Family: Child Disability and the Family System

Saturday, July 28, 2007

Disability Blog Carnival

I'm going to be hosting a Disability Blog Carnival here at Reimer Reason on September 13th. Every carnival has a theme. At the bottom of this page, I have a poll with some ideas for themes. Please vote for the one that you'd most like to see featured for September 13th. If you have another idea for a theme, please drop me a comment.
Thanks for your help, support and assistance!